grieving a rare diagnosis workshop - September 15
A rare disease diagnosis brings unique and ongoing grief. This session explores the complexities of this type of grief, offering strategies for managing uncertainty, chronic stress, and emotional challenges. Participants will learn how to find resources, support organizations, and provide compassionate leadership to others navigating similar experiences. Moderated by author Lisa Kefauver. Brought to you by the RARE Advocacy Exchange and Global Genes. Register here!
Getting a precise Diagnosis - September 18
Global Genes’ RARE Advocacy Exchange is a virtual event designed to empower, equip, and elevate individuals with the leadership and communication skills for personal growth, effective advocacy, and stronger communities. Register for the event here!
fall special needs workshops
Planning for a child with a disability goes beyond traditional financial planning, which is built to remove emotion from the equation and focus solely on anticipating needs in the future. We know you may also need help with the “today,” facing the challenge that is squarely in your path…right this moment.
The below virtual workshops are free to anyone who would like to register/attend. As you probably know, this information is rarely found in one place. If you’re still interested in starting your own planning, or simply learning more about the process, please click the title of the workshops to register!
How to Develop a Life Plan for a Long-Term Dependent
August 26th: 11am (PDT)/12 pm (MDT)/1 pm (CDT)/ 2pm (EDT)
September 16th: 9am (PDT)/ 10am (MDT)/ 11am (CDT)/ 12pm (EDT)
October 20th: 10am (PDT) / 11am (MDT) / 12pm (CDT) / 1pm (EDT)
ABLE Accounts vs Special Needs Trusts: An In-Depth Discussion
August 27th: 10am (PDT) / 11am (MDT) / 12pm (CDT) / 1pm (EDT)
September 17th: 11am (PDT)/ 12am (MDT)/ 1pm (CDT)/ 2pm (EDT)
October 21st: 9am (PDT)/ 10am (MDT)/ 11am (CDT)/ 12pm (EDT)